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Regarding need to amend the Labour Code to include the
persons with rare diseases and immunological disorders
within the framework of social security and workplace
protection-laid
SHRI TEJASVI SURYA (BANGALORE SOUTH): I wish to draw
the attention of the Government to the urgent need to recognise
and include persons living with rare diseases and autoimmune
conditions, including Myopathy, Myositis, and other neurological
and immunological disorders, within the framework of the labour
codes. There is a pressing requirement to introduce appropriate
provisions such as flexible working hours, work-from-home options,
reasonable workplace accommodations, and social security
safeguards to ensure that such individuals are not excluded from
the workforce. The Government of India has acknowledged these
challenges through the National Policy for Rare Diseases, and a
similar inclusive approach is required within labour regulations. In
2025, the Government also operationalised labour code provisions
to empower women, strengthen maternity benefits, and enable
work-from-home options where applicable under the Code on
Social Security. Many people living with these conditions?
experiences only occasional flare-ups or intermittent muscle
weakness and are otherwise capable, skilled, and productive
professionals. With supportive policies, they can effectively
discharge their responsibilities and contribute meaningfully to
economic growth and national development while maintaining
dignity and financial independence. I urge the government to
consider introducing suitable amendments to the labour codes for
the benefit of citizens with certain health conditions.