**Summary:**
As of July 2025, the Ministry of Health and Family Welfare reports that 4,361 thalassemia patients are registered nationwide on the sickle cell portal, with 2,579 being children under the age of 12. In 2023, a dedicated thalassemia module was integrated into the Sickle Cell Portal to facilitate state-level data entry and monitoring. While the primary responsibility for thalassemia management rests with State/UT Governments, the National Health Mission (NHM) provides support to strengthen healthcare systems, including resources for prevention, management, blood banks, day care centers, medicines, lab services, IEC activities, and training. The Union Health Ministry, in collaboration with Coal India Limited (CIL), implements the Thalassemia Bal Sewa Yojana (TBSY), offering financial assistance up to Rs. 10 lakh for eligible patients undergoing Bone Marrow Transplants (BMT) from CIL's Corporate Social Responsibility (CSR) funds. This scheme covers BMT procedures in 17 empanelled hospitals across the country. The information was provided by the Union Minister of State for Health and Family Welfare, Smt. Anupriya Patel, in a written reply in the Rajya Sabha.
Key Entities Referenced
Ministry of Health and Family Welfare: The Indian government ministry responsible for health and family welfare.
Thalassemia: A genetic blood disorder. The policy text discusses the registration, monitoring, and management of Thalassemia patients.
Coal India Limited: An Indian government-owned coal mining company, partnering with the Union Health Ministry to provide financial assistance for Bone Marrow Transplants.
Thalassemia Bal Sewa Yojana: A scheme implemented by the Union Health Ministry in association with Coal India Limited, providing financial assistance for Bone Marrow Transplants to eligible Thalassemia patients.
Bone Marrow Transplants: A medical procedure for which financial assistance is provided under the Thalassemia Bal Sewa Yojana to Thalassemia patients.
National Health Mission: A centrally sponsored scheme of the Indian government to address the health needs of under-served rural areas.
Sickle Cell Portal: A national portal where thalassemia patient data is entered and monitored. A dedicated thalassemia module was integrated into this portal in 2023.
Smt. Anupriya Patel: The Union Minister of State for Health and Family Welfare.
Ministry of Health and Family Welfare
Update on thalassemia patients registered across
country
As of July 2025, 4,361 Thalassemia patients have
been registered Nationwide, including 2,579 children
under the age of 12
Union Health Ministry and Coal India Limited Provide
Up to 10 Lakh Aid for Bone Marrow Transplants
Under Thalassemia Bal Sewa Yojana
Posted On: 29 JUL 2025 3:56PM by PIB Delhi
As of July 2025, a total of 4,361 thalassemia patients have been registered nationwide on sickle cell portal,
with 2,579 of them being children under the age of 12.
In 2023, a dedicated thalassemia module was integrated into the Sickle Cell Portal to enable states
to enter records of existing thalassemia patients. Regular monitoring, follow-up, and data entry for
screening are being carried out on the National Portal, strengthening surveillance and care for
thalassemia patients across the country.
The primary responsibility of management of Thalassemia along with raising awareness lies with
the respective State/UT Governments. However, under National Health Mission (NHM), support is
provided to States/UTs to strengthen their healthcare system including support for prevention and
management of Thalassemia at public healthcare facilities, provision of Blood Bank facilities, Day
Care Centre, Medicines, Lab services, IEC activities and training of HR etc. based on the proposals
submitted by the States/UTs in their Programme Implementation Plans.
Union Health Ministry, in association with Coal India limited (CIL), is implementing a scheme
namely Thalassemia Bal Sewa Yojana (TBSY) wherein financial assistance up to Rs.10 lakh is
provided to eligible patients for Bone Marrow transplants (BMT) from CIL Corporate Social
Responsibility (CSR) funds. This scheme provides for BMT in 17 empanelled hospitals spread
across the country.
The Union Minister of State for Health and Family Welfare, Smt. Anupriya Patel stated this in a
written reply in the Rajya Sabha today.
****
MV
HFW/ Update on thalassemia patients across country /29 July, 2025/2(Release ID: 2149694)